Does this look like mental illness to you?
We’ve all heard the expression that someone may be a little “buggy.” Well guess what? They just might be.
As a physician working primarily with cancer, I didn’t really have any reason to learn much about parasites, other than making sure my patients didn’t have flat worms or other parasites in their colon which could lower their immune system.
And of course, I had a cursory knowledge of Lyme’s disease. But since I myself was not afflicted, I didn’t delve that deeply.
Then I became the afflicted.
You may have read my blog on the “mitey mites” that invaded my apartment (from birds nesting outside of my window) and how they viciously bit me. The exterminator sprayed twice (for the hatched eggs) while I lived elsewhere.
Yet when I returned, the bites continued. I began to research mites and how to get rid of them completely. I followed all of the protocols diligently: washing bed clothes in very hot water, washing me in very hot water and a laundry list of other suggestions. But it wasn’t enough. From midnight to 7 am every night, the torturous biting would begin. I was bruising like mad, covered with pustules, small, painful boils and suffering from total fatigue. I could hardly take a shower without needing to lie down afterward. (Try working a normal day as a doctor in that state!)
I was ready to give up until I discovered the real culprit: a spirochete skin disease called Morgellons. There is so much misinformation on the web about this disease but I waded through it all. The fine fibers growing from my skin weren’t “fuzz from clothing” (as one doctor told me) but a symptom of Morgellons. I was even told I was suffering from Delusional Parasite Psychosis.
It’s no wonder many professionals don’t think this disease really exists. These little creatures are so small, you can’t see them unless you are an expert like Dr. Raphael B. Stricker in California or other colleagues who use a special microscope.
There are dozens of symptomatic relief techniques but according to Dr. Ginger Stavely they only provide temporary relief. I can attest to that. I did it all! I smeared my body with coconut oil and mustard, sprayed down my body with tobacco water (I smelled like a men’s private smoking club. When I went to the gym, I overheard another guest ask, “Is someone smoking in here?”). I dosed myself and my bed with cedar oil which slowed them down but only a little.
No one told me the most critical piece of information: they can be killed by antibiotics! I also didn’t know Morgellons is associated with Borreliosis, (Lymes’s disease) or smaller parasites that Lyme’s can carry, like Bartonella parasites. And we certainly never learned this in medical school. Parasites were something your dog or cat had so we didn’t take them that serious…trust me, I’m taking them seriously now!
I’m in a constant state of learning. That’s why I do what I do for a living. At this phase of my life, the lesson on the table? These little beasts are real and can attack any patient, especially those with a compromised immune system. It is not a form of madness or a hallucination, but a real bug with serious consequences.
And it gets more interesting: it’s possible that parasites and pathogens are responsible for many mental illness (even schizophrenia) where toxoplasmosis and retroviruses appear to play a role. In the past, I reversed a psychosis in 3 days by treating the patient for viruses. But even then, I never dreamed I would be the one considered mad, with little consideration that I may be a victim of a nasty parasite with a little spirochete that almost did drive me nuts.
Now I am on the road to recovery with antibiotics. I already notice a lessening of the biting sting and I’m sleeping through the night. The skin lesions have almost completely gone as well.
My takeaway? I take my patient’s symptoms even more seriously now. I learned the hard way about a disease that undoubtedly affects many people and is misdiagnosed, or even worse, written off as crazy.
Ignorance does not heal, knowledge does. Most of the medical community has no clue that Morgellons is really a parasite, not some mysterious disease. Now perhaps we can help other patients by spreading the word. People with Morgellons need to avoid misinformation on the web or physicians who blithely say “it’s all in your head.” To those doctors, I say “bug off.” It’s not in your head, it’s in your body.
Let’s get everyone who suffers from Morgellons or other parasite-related diseases happy, healthy and most importantly, heard.
Thanks very much for this article, Dr. Favin. There are some similarities between your experience and ours, but I am not a doctor, I was a mental health worker. I live in the UK.
My husband and I were unfortunately infested by bird mites last May following a recently vacated birds nest in our roof space.. near the bedroom window. We are still being bitten, but I have some new physical symptoms… and they appear to fit the criteria for Morgellons Disease. I experience an uncomfortable tingling, prickling sensation in two locations on my back, and another similar one on my left thigh. These sensations only start up in the afternoon.. and stop just before I go to bed, thankfully. The most recent symptom sort of nailed it for me.. I use Kleen Green, which claims to help with the control of mites on the body. I don’t get many bites, I get some crawling sensations in random places. My husband doesn’t suffer too greatly, very few bites, very little crawling.
Anyway, after applying the Kleen Green, I noticed numerous small black whiskery hairs and a few thicker ones on my skin. I was mystified..and terrified. They came off easily.. then reappeared.
I thought they could be just fluff from something, but there were too many, and too similar.
Later on I repeated putting KG on my abdomen area to see if it would happen again, and it did. Not sure why the KG would cause this, though.
I would appreciate some advice if it’s available, I don’t want to suffer this disease much longer! Thank you, CP.
I am experiencing the exact same thing, I’m curious if you solved the mystery?
Why are you telling people antibiotics will cure it? That is disinformation!!!!
Dr. Flavin did not say antibiotics would “cure” this issue.
I thought I had scabies although it was never diahnoses and could not get refill on the ivermectin. So I ordered some aople flavored ivermectin horse paste off of Amazon. I’ve self medicated that for about a year off and on with breaks but it comes back after a few months ivermectin is the only thing that seems to help along with tea tree oil and salicylic acid shampoo.
Later around Christmas the scabieslike symptoms accelerated and then turned into fibers all over my body . With internet research thought I had Morgellons or even loaloa. Initially they looked like tiny bugs so I bought a microscope to confirm. They weren’t little mites (God only knows I’ve examined hundreds under 100x magmification. They were little bundles of colored and black fibers. They seem to only populate certain areas like my belly, neck shoulders back and arms. On my arms are white streaking scars which at first I thought were scabies burrows. Now I’m not so sure. To date the ivermetictin treatments and tea tree rinses work the best. I would really like to get this thing treated for good but everytime I seek medical help they think I’m nuts. The last dermatologist didnt believe me and I told her I had photos but she wasn’t interested. Over the years I ve had chronic fatigue and mental fog that started on my late thirties. I felt I was sick or vitamin deficient but could never find a source so I just accepted the fatigue as a metabolism change. My thyroid was normal. The fibers did not appear until recently when last summer I began to get no-see-um bites or so I thought. Then the whole insanity of doubting my own eyes really hit home for me. I would really love to be be rid of this disease before i actually DO lose my mind. I doubt myself and my symptoms at first but then I look at the pictures and know I’m not crazy I just have some weird infection. I’ve now ordered more ivermectin for backup waiting for the itching and fibers to return. Something was growing around my mouth a few weeks ago that looked all wrong. The cells were changing to resemble an acne mark but I’m 58 years old and dknt believe that this problem was acne. I bath about once a day in the shower and if I have a hot shower the fibers start to exude and drop from my skin. Under the microscope they appear as fibers or bundle of fibers or even nematodes but they never move the doctor said the mouth infection was yeast. But I think it is related to this weird disease. I’ll donate plenty of pictures and fibers if it would help find out what the heck these weird fibers are. Its literally driving me crazy that I am so afflicted yet no one seems to believe me. That’s where the self medication with ivermectin came in. I just couldn’t deal with it anymore.
God i’m right with you on this. i have gone to the ER four times and have changed my primary doctor three times. I begged for Albendazole to cure me but not one of them would even give me two minutes of their time. A
very hard working attorney through blue cross is helping me like mad and i owe her my life. I had roundworms crawling on my back, in my as*****, and i’m my hair. They would sleep behind my ear. You know you are in a bad state when you start talking to the worms. It’s amazing that “some” doctors these days won’t even give you two minutes of their time. They keep you months waiting room for over an hour but i i can’t get two minutes of their time. Talk about arrogant. I found that Enay sells tons of anti parasitical medicine. I bought Albendazole and everything i needed on there. If you don’t
see it, so the seller, sometimes they don’t list it for fear of be in h booted off Ebay. Also, entered the enteric name of medicine if you can’t find it. ebay is run by keywords
God i’m right with you on this. i have gone to the ER four times and have changed my primary doctor three times. I begged for Albendazole to cure me but not one of them would even give me two minutes of their time. A
very hard working attorney through blue cross is helping me like mad and i owe her my life. I had roundworms crawling on my back, in my as*****, and i’m my hair. They would sleep behind my ear. You know you are in a bad state when you start talking to the worms. It’s amazing that “some” doctors these days won’t even give you two minutes of their time. They keep you in the waiting room for over an hour or more but can’t give two minutes of their time to you. Talk about arrogant. I found that Ebay sells tons of anti parasitical medicine. I bought Albendazole and everything i needed on there. If you don’t
see it, so the seller, sometimes they don’t list it for fear of being booted off Ebay. Also, entered the generic name of medicine if you can’t find it. Ebay is run by keywords
God i’m right with you on this. i have gone to the ER four times and have changed my primary doctor three times. I begged for Albendazole to cure me but not one of them would even give me two minutes of their time. A
very hard working attorney through blue cross is helping me like mad and i owe her my life. I had roundworms crawling on my back, in my as*****, and i’m my hair. They would sleep behind my ear. You know you are in a bad state when you start talking to the worms. It’s amazing that “some” doctors these days won’t even give you two minutes of their time. They keep you in the waiting room for over an hour or more but can’t give two minutes of their time to you. Talk about arrogant. I found that Ebay sells tons of anti parasitical medicine. I bought Albendazole and everything i needed on there. If you don’t
see it, ask the seller, sometimes they don’t list it for fear of being booted off Ebay. Also, entered the generic name of medicine if you can’t find it. Ebay is run by keywords
I went to the hospital and they asked if I smoke drugs.. They won’t listen. Can I get something over the counter?
He’ll yeah I agree…..You are 100% right on that I have it as well but I won’t go to doctor cuZ they will think I’m crazy
I am a 46yr old woman who about 9 mos ago also started with parasites. Tested positive for eggs for multiple parasites on parasite id online. You need a scope and it detects eggs. I have the colored and manly black fibers in every picture. Even my parasites have them In the pics. My mom went to Mexico to get Me Ivermectin. I had 1 rx from Dr herein usa but they say “we don’t have parasites here” .the Ivermectin from Mexico actually helped me feel btr for a week tnen I have to take it again. And again. I am all out now. I have the horse paste for my cats. I will use it also if I have to. I need to get other meds for the shistosoma mansoni and ascaris. I find the eggs all over the house . Idk how they get there. They have to be getting out all the holes on my body that they made. I get worms running down my legs in my blood.i put it all in formalyn in the rare case that a Dr will give me thr time of day and send it to a lab. Iv begged for blood tests or anything and all 9 ( iv seen total of 14x ) Dr’s world not do a thing. I was not crazy but it’s driving me crazy now. I can’t do anything other than look at pix under scope and clean. I have a weird residue coming from my entire body. It comes out my feet the most. I have to trow em away every day. They come out at nite. And keepe up also. I at least laughed when she said she talks to her worms cause I have Done that also. They r smart. And they communicate. They hurt me. If the only symptom was my stool being nothing but worms I would not care. But it’s painful and they destroyed my body and looks. I am basically double jointed now every wer. I have flat feet now. I’m swollen .the hair worms that come out of my skin get into my hair n I feel it move and seen It fall out and tie itself onto a bow and then it collects stuff on it n hurts really bad when it gets bak to me. I also have the little squiggly invisible worms or fibers that r alive and blue under thr blak lite all over my bed and carpet. I just last week got all my carpet tore up n put wood down. These black specks (that come out after the hairworm, they are attached at the end but usually come apart when they come out of my skin) are destroying my floor alredy. I can not live like this forever, idk how much longer I can put up with it. Does anyone have any other help besides the MG. Please help
morgellons direct, and MMS, and real gene decode has protocols that work
I know it’s a year ago but I have all 3 you mentioned. Have found medhelp? If not or just want to talk email is paul02085@yahoo.com
I know exactly how you feel and what you feel. I to have been blessed with Lyme disease. I have the same exact problems, from Lyme. I ask my wife for help, and she can’t see them, until I pull them off. Then under a mag glass or if they catch the light. I did go to the doctors yet, I was hoping to have proof so I don’t look like I’m nuts or trying to get drugs. Lysol all purpose cleaner seems to knock them back f for a short time. I’m thankful for finding your page & reading your stories, realizing I’m not nuts. I will post pics& findings.
Thank you. Bill Toc
I noticed the problem start in 2018. It started slowly as I noticed when ever I would go into the bathroom and stand at the sink, I would feel as if something was jumping on my feet and crawling and itching. Over time it got worse and quickly. I noticed crawling sensations on my body, spots floating in my eyes, weight loss, hair loss, sweats, fatigue, nausea, swollen lymph nodes, fever, heart palpitations, nerve problems, twitches and moving skin, and endless other symptoms. I got so sick that I went to the ER 4 times in one week and yes all the doctors thought I was nuts. I continued seeing multiple types of doctors on a daily basis for a year. Its strange because so many people are all going through the same thing in the same periods of time, which is like a 21st century thing. I do believe something very strange is falling upon us and its affecting people with more compromised systems and some underlying health issues. I know I have a cyst in my pituitary gland which causes elevated hormones. I may have candida overgrowth in my gut, but haven’t been tested. I’ve been on antibiotics countless times for cysts, abscesses, UTIs and all sorts of problems. In fact I’m on some now. I’m not good at taking my probiotics and have bowel problems which I feel has something to do with it based on all the toxin build up. I notice crawling in my anal area a lot and have felt things travel up into my body and its very very scary. One time after I felt that, About 3 days later it felt like some sort of eggs sprayed out all over my legs and then thousands of crawling and immediate biting sensations. The crawling was always worse at night. I even thought I had pinworms but that was negative.
My fiance left me because he thought I was crazy but I have seen multiple things going on here. Seeing IS believing.. Things I had NEVER seen before. The problem went away after a couple of months but returned about A year and a half later (3 months ago) and has not stopped. I normally notice the crawling in places where hair follicles are, Feel my hair moving at times. I’ve thought everything from bird mites to storage mites to demodex mites to mold and fungal spores.
Some of the things I have seen with my eyes are 1.) Glitter specks in my home around windows, on window screens, in my car, and moving in and out of my skin pores. 2.) In my bathtub and drinking glasses what looked like some kind of floating swimming things. Some were reddish brown and some were clearish white. Thought they were mites. Very very tiny but swam to sides of the glass and up the side. The red ones had more energy. I never saw any of these on my skin. I did have cats though. Never had any marks on my skin but definitely crawling and biting. 3.) Tiny moving hairs in water that came out of clothing 4.) Tiny flying white fibers and white dots infesting my clothing, flying around in my home and car, literally darting at me.. They are attracted to humans and I was wearing my face mask one day and watched one go right down into the mask to my mouth or nose.. i feel them on my eyes, in my ears…its awful. I’ve tried everything. 5.) With lights out in my apartment and phone flashlight on, what looked like dust particles flying around with intelligence as if it were an insect. They are all over my car too and I have felt bites. This is scary because I know I am constantly breathing them in. Also easy to see in the sunlight. I have avoided my apartment for over a week because i feel when I’m there i get worse.. The white fibers were also all over my window screens,, like fungus.. These fibers move. I get them in my throat. I have one in my throat now. Only thing that loosens it is listerine. I even drank a mixture of water and borax once as I read somewhere and when I did that, I felt bites in my throat. When I spray chemicals on surfaces, like windex, for example, it seems it pisses them off on my skin and I feel like they are biting or wriggling in my skin. I’ve seen the glitter all over my feet and if i wipe it it comes off but keeps coming out of my pores. One time my cat was standing next to me and I felt on my bare skin what felt like thousands of ‘things’ jump to my skin like a magnet, but you see nothing. I also felt it come off a bag of dry cat food once, same thing. Dust like particles and clearish white fibers are covering every surface. The fibers are in brand new sneakers in boxes that have never been worn. I see the particles on my cell phone as I’m typing. In my car when I wear flip flops I feel things jump off the floor onto my feet. Sometimes I feel things go under my toenails, especially when I take a shower. I’m looking on my cotton sweatpants and see the fibers all over and some move. These fibers breed and multiply like crazy in cotton materials.
Something is going on that doesn’t make sense. Multiple things, not just one. Morgellons is not natural. This is definitely an attack on humans. Whether its here on earth or some alien thing.. i watched a YouTube video where a man put morgellon fibers under a microscope and he saw letters on the glowing fibers. And why are people pulling hexagon shaped crystals out of their skin. Too many people suffering from this. Its made me so sick that I can’t work. This isn’t fair. I have spent so much money and tried countless things. I feel this problem is only going to get worse and more and more people will suffer. Whatever, whoever is behind this is just sick. Never have we experienced anything like this and suddenly more and more people are noticing, getting sick. This is definitely an attack.
I am in total agreement with everything you have said. I’m scared I’m not going to be able to function knowing that there is no body who understands what it is . But I know exactly what is happening and I can’t get help.
I think that morgellons might be caused by a much larger, invisible, previously unknown worm of some sort. I see marks that look the same everywhere- in my house, in my car, in stores, in public buildings… These marks are kind of teardrop shaped with a little circle shape above that. There are also marks that look like a tornado or spiral or twisted string. They’re clear, but noticeable.
Not only am I suffering extreme pain, anxiety and discomfort, but I can’t work anymore.
These parasites show up in many forms, which I would attribute to multi parasitism, life cycle stages, portions of a larger organism, DNA mimicking, or smart fibers.
I do feel that we are under an attack of some sort. I was beautiful, healthy, thriving, and had an amazing career that all stopped in 2018. The first thing I remember looking back is finding white and red or white strings all over my yard.
Then the headaches.
Then the little white fibers everywhere, responding to heat, coming out of my dog and cat
Then the fuzz balls and white thread in my daughter’s hair and in our clothes, the lint catcher bring filled with this crap when I put liquid ivermectin and pyrantel pamoate in the washer
Then the pain in my knees
Then my daughter’s knees
Then the eye, nose, and cough stuff that looked like worms
Then the marks on me, my daughter, and my dogs skin that looked like worms
Some sort of sticky yellow substance is covering my walls and furniture, getting into cabinets and dressers, along with various types of fibers. There is physical damage to wood furniture, vinyl and wood flooring, wood and drywall building materials…looks like a worm ate its way into stuff or acidity broke down these materials. It looks like there are tiny spiral hairs in the paint on my walls.
I’m so disabled and terrified…of being on 1/3 of my former salary, of my house and belongings being destroyed, of losing my pets early, but mostly I am terrified for my daughter.
I had no criminal record and was a hard working single mom until a pediatrician refused to evaluate my daughter’s symptoms, which trailed behind mine by a couple of months. I started having tremors and horrible pain and itching,, which my daughter also described,, but the doctor called me crazy and reported me for child abuse to DHHS because of “stress in the home”. I ended up in jail for threatening the pediatrician. One day,, she IS going to pay for what she did, dearly. I hope this shit kills her entire family slowly..
The marks I described earlier were all over the jail. I noticed one day that the navy was in the jail. I wonder why? They know something. Interestingly, a navy base nearby was in the same area where foxes had started attacking people and acting crazy. In the news they said it was rabies, and that the foxes would all be captured and killed…not tested…now why would it be worth screwing up an ecosystem like that by removing the foxes completely instead of testing and releasing the ones with negative rabies results? Not only that, but it was the USDA that managed the program…agriculture, not inland fish and wildlife. Wtf? Nematodes. That’s what I think.
IMHO, covid 19 is not a virus. It is a parasite that destroys our bodies, our homes, our SOIL, our minds, our pets, and our livelihoods.
A DNA expert who analyzed samples I took (I’m an environmental scientist) from me, my dog, my cat, and my home…all of them came back with the same human DNA code…now how is that possible?
I’ve found that there’s too much going on for me to unveil it alone…so I’m hoping we can all help each other. I’m losing cognitive and physical function at a steady and fairly fast rate. I need help. I would love to exchange photos of observations on this with someone. Anyone willing?
Yes Chris I believe you are right about The Rona. Can you contact me?
Oh my God this is my day to day life and it has been for months now . everything you just said describes everything I’m tormented with 24 hours a day 7 days a week.i have felt completely alone and crazy.i started making videos of my hair attacking my face to the fibers on a QTIP moving around that came out my eyes.i just needed proof of everything so my family could see the hell I have been going through in case I was to die from suicide or health reasons.the struggle is real
I know your pain…exactly.
Did you find any reprieve?
Since my eye Dr put me on antibiotics for infection in both eyes it’s a little better just a little and some days aren’t as bad as others..I’ve had to throw away a lot of clothes over the summer due to itching and clothes being covered with things only my phone flash light can see..I’ve had to get rid of my memory foam mattress that I just got paid off due to long string like things hanging out sides of mattress that has gotten all over everything in my home that literally feels like a spider web on my face and skin .I had to get a air mattress and put it on my bed frame instead.. I’m always soaking my clothes in the bathtub with vinegar tea tree and so on in the water before I can put it in washer because washing with the stuff wasn’t working..I have to clean my washer before and after and same with dryer..I have found myself having to walk around my apartment naked until I can rewash something because after I investigate it with flashlight because of stupid hair that moves or little clear things that stick straight out every where I find I just can’t and I lose it and cry.i just started separating close and then putting them in the grocery bags instead of putting everything in one bag .I put shirts in one panties in one shorts in one that has helped the rewashing some.. what really gets me is I was constantly having to buy new panties alot would not even make it out the bag that I would have tied up in my drawer because of the clear fibers would somehow attack them..they have gotten into my storage containers and covered my winter clothes that Im just now having to soak in tub a few at a time.cleaning is a challenge it’s all very exhausting..I recently started bombing with flea and lice products just so I can get into my bedroom closet where my storage containers full of clothes are that seemed to work so I bombed rest of apartment 2 days ago.im now cleaning to see if it worked.my eyes seems to be their favorite place I am always cleaning them out corners of eyes an digging and out lashes .long clear wiggly freaking things that are always moving and biting me in my eyes and on skin. I can feel it
come off my eyeball when I go across eyelash with QTIP that really creeps me out.im just glad my skin hasn’t suffered.. I wouldn’t wish this on my worst enemy
Have you by chance found out any information on what this is, how to rid your life of them. Etc.??
I would love any info on what this “imaginary” pest is.
Have a blessed day.
Jill,
I feel the exact same way as you. I too am going through a living hell. My life is like a living nightmare. And One of the worst things about it is that No one believes me. Everyone thinks that I am delusional that I’ve lost my mind. But I have not. I am very sane and very aware of what is going on and what is happening to me. I’ve gone to numerous emergency rooms around California numerous urgent cares my primary care doctor won’t help me. My entire family is telling me that I need to see a psychiatrist and they don’t want to hear my complaining. I am suffering. I have just been sitting out on the front porch sobbing and crying feeling hopeless. I feel like this is a government attack or as you said, possibly alien. Whatever it is I want my life back. I am flat broke, I cannot work, I am absolutely miserable. My life has stopped and I am living out my worst nightmare. I don’t know how much longer I can take this. I can’t stand this. My beauty is going Due to all the chemicals & treatments and potions and lotions I’ve been slathering on my skin and hair and face to try and make this nightmare end. I am afraid to comb my hair for fear of ‘things’ jumping out of it. I have weird worm looking things coming out of my vagina my butt hole my mouth. I don’t know what to do.
I I’ve been having all the same symptoms with you and the others! You’re not crazy I feel the same way I can’t get no doctors emergency rooms oncologist you name it to help me dermatologist, Cleveland Clinic, U if M no one will listen! I have lupus and stage for colon cancer and I can’t handle do treatments again if I can’t get rid of whatever this is my body can’t handle it so I either die from this or cancer I feel like you my life has been over I lost my hair that was long and beautiful at eight all my teeth away I’m anxious all the time and I’m broke from paying all these doctors and hospital bills! I feel your pain!
I have video of it magnified and looked like it was eating to glowing substance. My little dog and I both have had it a few months. I’ve tried EVERYTHING!!!
Ive been shunned by thall I brought this up to for help. Please, tell me where to go for it to stop. Where do I turn in the videos of movement?
Agree with you and I have seen many of the same things you are describing and more.
You guys… I’m scared to death. Im shaking and in tears and now afraid to go to the Dr. I thought my dog gave me scabies it was the only explanation I could find. I went to the vet yesterday and she gave my dog Nexcare anti flea, tick and mite once a month chewable tablet. I had an over the phone dr consultation and he prescribed a tube of permethrin. Like all of us here :I thought I was losing my mind but I know what I see when I examine samples of my hair and my . dogs under 120x lens. Tiny worm like creatures with a “Y” shaped head. Mostly translucent but I have seen the other color ones described above. I also see amber and dark brown what I can only describe as egg sacks. After watching these things for a minute I thought I was hallucinating when I saw they had a heartbeat that looked like a rainbow spark. I also saw that there are a few stages of life and at what I’m guessing is or near maturity was that they have long tentacles and if you look close you will see they wind themselves tightly around the hair shaft. I find the debris of their dead fiberous squid like bodies .today I noticed them under my skin and feel them biting me… penetrating my skin and swimming swiftly underneath my skin. Now I’m reading all this and I fi d out I’m not alone but its bittersweet because you
All say there isn’t a cure and medical professionals call you crazy.
I’m scared to death. I have no family or anyone to talk to . Its obviously contagious…right?
Should I go to the er and see about getting those tests? I dont have a primary care dr. Another in common factor is that I also have a comprimised immune sytem due to hypothyroidism. I’m pretty sure my friends dog gave it my dog who intern gave it to me. He has swollen lymph nodes and eye gunk and have you guys noticed the long 2,
Mostly white spine like hard hairs. I’m so scared. I don’t know what to do……
Hi there the fact that you say you see two or so random white hairs that are longer and thicker on your dog is insane!!! My dog has a blue coat and he has these two hairs that are 9 inches or so apart from one another but I noticed also that they’re not the same texture as his normal coat? And I too thought I had scabies.. I’ve been dealing with this for a 2 months now. Only thing I know I had was carpet beetles and this same situation happened to me!? I’m going to post a forum for you to look at and more people with out same conditions have one thing in common…carpet beetles infestations or rat mites prior to all this happening!? Someone also thought maybe rotifers that have gotten in water? Whatever the case is, I know that I have found one thing in common with a lot of ppl and that’s the infestation from these pests that was prior to getting this hell of a condition!
I’m very glad to read your comment. I too have seen all these same glitter specks and crawling skin and so much more. I’m so sorry. I understand completely. I’ve lost all my friends and my relationship won’t last another round. I hope and wish the best for you. thank you for sharing this
OMG, SERIOUSLY, IM PISSED, IM RELIEVED, IM EXHAUSTED AND EVERYTHING LISTED IN ALL THE COMMENTS HAS HAPPENED TO ME OR IS OCCURRING NOW. THERE SEEMS TO BE A WIDE VARIETY OF BACKGROUNDS HERE. HAD ANYONE NOTICED A PATTERN, OR SIMILAR BETWEEN ALL OF US? MOST RECENTLY THE GLITTER CEILING SPECKS ON MY FLOOR. HOWEVER, I WAS UNDER THE IMPRESSION THAT THE TRANSLUCENT THINGS FALLING FROM MY CEILING WERE NEMATODES…. FLESH PENETRATING PARASITES, MY BODY REJECTS ALL THESE. I BREAK OUT, ITCH EXTREMELY BAD EVERYWHERE, LITERALLY EVERY ORFIOUS, NOT SURE IF I SPELLED THAT CORRECTLY. BUT ONE THING THAT NOBODY HERE HAS MENTIONED I DON’T THINK, I READ ABOUT OF COMMENTS, NOT ALL, BUT, FOR THE HELL OF IT, IM GOING TO MENTION SOMETHING I’VE DEALT WITH FOR AROUND 6 YEARS NOW… GANG STALKING, GROUP MOBBING. THE PURPOSE, REASONS IT MAY HAPPEN TO SOMEONE, NOT EVERYONE, IS A COUPLE DIFFERENT REASONS. BUT WHY THIS, BECAUSE ITS A PSYCHOLOGICAL ATTACK AND IF YOU WERE INDEED PUT ON A LIST AS A TARGETED INDIVIDUAL, THEN THESE ATTACKS MIGHT MAKE MORE SENSE…. PLEASE BE OPEN MINDED, THAT’S ALL I ASK. BECAUSE MUCH LIKE WHAT EERE ALL EXPERIENCING, YEP, GANG STALKING IS HIGHLY CONTROVERSIAL AND WILL HAVE PEOPLE LOOKING AT YOU FUNNY AS WELL… This MAY OR MAY NOT BE THE REASON THESE THINGS ARE HAPPENING. FOR ME, TO SEE ALL OF US EXPERIENCING SO MANY SYMPTOM S AT THE SAME TIME, IS STRAIGHT FUCKARY AND BS. EXCUSE MY FRENCH PLEASE. ALSO AFTER DREAMING WITH GANG STALKERS FOR SO LONG, I GOOGLE SOMETHING THAT KEEPS HAPPENING TO ME. THIS IS WHAT CAME UP FIRST. HYPERDIMENTIONAL MATRIX AGENT… LIKE, HOLY WTF RIGHT. INTERESTING, ABSOLUTELY, REAL, NOT SURE, BUT OPEN TO IT, SOUNDS VERY FUTURISTIC OR SOMETHING TO DO WITH SORCERY, ETC.
I WOULD LOVE SOME FEEDBACK PLEASE. THANK YOU
STAY SAFE AND JUST KNOW, FRFR YOU ARE NOT ALONE AT ALL.
Wow I agree with you completely but haven’t said much for fear of people thinking I’m nuts. Where do u live? Im in N california
Water supply?
Hi Jill, I’ve had the same exact symptoms to the T! I’m 31 years old and live in San Diego, Ca. The only difference in my situation is I found I had an infestation of carpet beetles prior to having these occurrences. But I have same crawling sensation and I have it worse on my scalp and face (beard), no fibers coming out of me that I’ve seen but I have all the black and white dust specks and the white specks in my hair I can tell aren’t dandruff or skin flakes. Some look skinny and narrow like a tiny white or tannish worm that’s straight, some are just white dust looking specks, some are the black ones and I swear you can see a tiny piece of white on it it as if there is a hair coming out of it?! My poor dog has gotten infected from whatever it is as well. I thought it could’ve been mites or some mold that I found on my tack strips in under the carpet.? One thing I did realize was I used to feel better when I would leave my house and get relief. But my wife and I tried going to a hotel for a week about a week ago with our dog and still felt the symptoms there unfortunately. Which made me think mold wouldn’t be the culprit.? The vet said my dog has malasezzia yeast build up in his ear when I took him there. I thought it would’ve revealed why was plaguing us all but unfortunately did not. I’ve also noticed how no matter how much I wash my clothes they still are infested with these small white specks. My black socks or shirts show it best. The black specks seem to sting or bite and the white one seem to make the crawling sensation, but no moving from any of them unless they’re airborne and then it really looks like these dust particles seek out my body if I’m within a couple feet of them. And just like you and your cat, I too feel it a lot worse when I’m close contact with my dog. I don’t want to cuddle or pet him too much anymore out of fear of getting him more infected or in worse shape by me transferring any that may be under my nails or on hands and he can tell that there’s something terribly wrong with mom and dad. I feel like I I’ve failed my family by not being able to keep my promise of keeping them safe and healthy ???? Im moving in a couple weeks to PHX, AZ and leaving all my stuff behind and only taking some clothes in trash bags wrapped up and also put in containers and washing them all twice over before taking anything in my new place in hopes of being able to leave this and contain it in a new home. I don’t know what if I can handle having this follow me and not get rid of it. I’m worried I’m gonna commit suicide if I can’t get some sort of help or relief. I know I’m not crazy and the people also suffering from this aren’t crazy either! Something is most definitely going on and it’s either an attack on us or a mutation of a certain parasite/insect that’s able to infest us from within instead of only being ectoparasite? Whatever this is the medical field dismisses it and says we are all crazy. We all need to help collect and share all the best info on this and pass it on. I hope everyone else gets relief from this and more importantly, a cure! Permanently! God bless and best regards. Oh and I almost left out that my eyes had the worst of it to begin with. They started accumulating white flakes and crusts at base of eye lashes and my eyelashes have started falling out. Someone please help us!
-Kyle from San Diego
Kyle, I’m so sorry you are suffering like this and your poor dog!!! ???? I started crying when I read your comment. This is HORRIBLE!!!! Whatever this is or wherever it came from, I truly don’t know. But it has made my life a lonely, living hell. If you are in need of some relief, I suggest that you purchase some chlorhexidine gluconate 4% and use this as your shampoo, as well as well as.your body wash. I order the chlorhexidine gluconate 4% shampoo for dogs, puppies, cats & kittens off Chewy.com for myself. if you Google search chlorhexidine gluconate 4% you can find it in gallon size jugs for about $39. I pay about $15 for the shampoo from Chewy.com. And then I use my regular conditioner afterwards with some eucalyptus oil in it or Teatree oil You can also use this chlorhexidine on your dog as well. Just don’t get it in his or hers eyes! I feel like whatever this is some
Sort of bacteria and the chlorhexidine gluconate kills micro organisms. Try it and see if it helps. keep it on your skin and hair for 10 to 20 minutes and then rinse you might have to use it a few times a day but it does bring relief. Some other things I have found relief w/is my portable ozone machine, my battery operated fabric shavers, my sticky lint rollers and I always have numerous cans of Lysol disinfectant spray. I know it’s not healthy to do but when I get really bad crawling and tingling and my hair is moving and those weird mutant hairs are trying to crawl into my eyes, in my nose, ears, etc. I spray Lysol all over me. I close my eyes and spray Lysol on my hair and face and it stops for a while. I truly hope that you and your family can find some peace
I pulled a fiber out of my 6 yr old daughters stool n put under microscope n it had letters on it as well!!! WHAT IS GOING ON!!! IN THE NAME OF JESUS!!!!
Hello Jill, was wondering if you would like to chat? Every single thing you wrote on this blog is the same situation I’m in, the same things I’m seeing, and of course I am getting the same response. It has been some time since you wrote and to be experiencing the same response doesn’t make sense if there are this many people experiencing this strange anomaly . I would like to know if you have found anything new? I don’t care where you are located as I am in Seattle Washington and if ANYONE can direct me to anything that has been figured out or any current information I would be grateful and I’m available to share my experiences as they are ongoing. My email is meegeepage52@gmail.com
Omg so can someone get ahold of me. Because I have very serious underlying heart 4stents / pancreatitis pancreatic divism : the list goes on but I can relate to every single thing you’ve all said : but I live in a tiny little town and I won’t tell the doc all the weird phenomena that accompanys this but I have so much evidence : even my roommate won’t hear it even tho she see it ravaging my body : and I’m an ex drug user been clean over 10 years and that’s the first thing the docs say under the breath or ask me directly : I really don’t kkkw how much more I can handle please someone help me : Ps : has anyone seen what looks like liquid Mercury I have some vid and pic. This i wouldn’t wish on the worst :! Again please help
Toddsande@yahoo.com
Jill Fitzpatrick….
Reading your post had me talking to myself out loud and agreeing with basically everything that you said you were experiencing! This is unbelievable! Definitely not a coincidence if so many ppl are experiencing the same exact sci fi like symptoms. It’s a F’ing living nightmare!!! I keep seeing black pepper like specks on my face eyes, neck, my bedding, the toilet, the refrigerator… EVERYWHERE. I can vacuum, wipe them away with one of my numerous different kinds of cleaning/disinfecting products, or blast them to smithereens w/my high powered steam machine and they are back moments later. It’s like they appear out of thin air. I also keep finding weird hairs that look like they came off a black dog all over, as well. I have them (along w/the pepper specks) in my nasal passages, as well as in my armpits, my groin I even have them coming out of my butthole. I had one that was standing erect on the toilet paper after I wiped myself. I was at a point where I was afraid to use the bathroom as well as bath or just change my clothes because I didn’t know what I was going to find in my underwear or under my breasts next. I feel like whatever it is comes out of my lymphatic system, as well as any and every other orifice and pore in/on my body. I also frequently find these clear, slightly ‘squiggly’ looking fibrils or very slim fibers all over myself & the environment I’m in. It’s like they grow out of objects and when I pull on them they’re like rooted into whatever they were on. It’s really weird I also noticed that cotton swabs seem to have these things inside of them fresh out of the package. It’s really creepy. I’m afraid to even use Q-tips I’ve been ordering foam swabs online. I have been dealing with this for over a year. Actually I had a bout with this back in 2010 but it only lasted for about three months and then it went away and went dormant until December of 2019. And if came back w/a vengeance! When it first hit me I was mortified. I lived in one of those full coverage, disposable, white painters suits with the attached hood and built in feet for over two weeks and my son thought I was insane and wouldnt even speak to me. I was terrified that those things that were coming out of my body were going to infect my family and I did not know what to do. I am still miserable and still living a nightmare everyday but I am now forcing myself to try my best to cohabitate w/whatever the hell has hijacked me and taken over my body. I mean…!what other choice do I really have? I’m totally not suicidal. Homicidal, maybe but definitely not suicidal. I have seen about 20 different medical professionals (doctors, nurses, nurse practitioners, clinicians, etc) and I could not get a single one of them to help me. I was refused a throat culture by an ENT. Flat out refused. My numerous requests to see an infectious disease specialist have been rejected. My request for an X-ray or mri has been ignored. . I have been treated like a second class citizen in emergency rooms once they hear what I’m in there for. I was sent to a dermatologist and unbeknownst to me at the time I was given a full panel drug test by the dermatologist yet not a single lab was taken to see if I had a parasite or some other issue going on. This whole year has been a living hell. I don’t know what to do. I have spent THOUSANDS of DOLLARS trying to find a cure bug have been unsuccessful. I’ve tried red light therapy, cryotherapy (and fainted) essential oils, natural remedies, blah, blah, blah….. I even bought several ozone machines which seem to help stop the crawling and tickling sensations. Ozone also seems to stop the mutant motile ‘hairs’ of all different colors, lengths and textures from traveling across my body. But it also causes me to have respiratory problems. I also have found temporary relief by using chlorhexidine gluconate 4% as a body wash and shampoo and leaving it on for 10 to 20 minutes. I have even brushed my teeth with this stuff even though it tasted horrible. But I could see that it did kill a lot of the biofilm. But of course it returned and is just as disgusting and sticky as ever. Anyways I’m sorry for the long comment. I could go on and on because I know I’m forgetting important things. Oh one last thing these sensations you speak of where you feel like millions of tiny little things are crawling all over you at once, I think.what they are is a bunch of little teeny tiny black hairs that look like what you would see in a sink after a man shaves his beard. Small, little teeny tiny short hairs. They are so small & fine that they’ are difficult to see. You have to have a good light ans a good magnifying glass or zoom on your phone to see them. But that is what is crawling on me because I use sticky rollers and I go through about three a day and after I lint roll my body I see these little black hairs everywhere All over the tape. Anyways that is all for now. Hopefully there will be a cure for this nightmare sooner rather than later.
Hi, you are dead on about so much. I was also sent to a dermatologist by a new primary. They were a joke…. I’m going to tell you something that convinced me 100% that our government and their cronies, “Gang Stalkers” are the ones behind all of this. I submitted 2 labs, one at the clinic oh, and one at the hospital. I was assured that there was a standing order at the hospital and that they would be in there that would basically break it down whatever I brought in and they can tell me what it was that I brought them and the doctor also said if the test came back negative I had to agree and be open to going to see a mental health provider. I agreed and then I submitted whatever else that I had found that came out of my body to the hospital. The stool samples that were literally crawling with worms of some sort, were dropped to the clinic.. I waited a full week to call about my results of course nobody called me. When I called the nurse got on the phone I understand that you’re calling about your laps and I said yes ma’am. She said okay well I got your lab results back here on Friday at 3, 3 p.m.. and I said I said last Friday? She said yes okay she said we got you staying aand she said all your results were negative. Now I’m sitting here with my temper Rising. I explained to the nurse that, what she said was very interesting. Why, because You, meaning the clinic, got my results back roughly 3 pm, I said interesting, Because I didn’t drop those samples off until 4 pm that day. And also, Because I’m very honest, I had been using drugs and knew they would say something that was strange, just not completely prepared for what happen after that. I’ll write more Later k. Sorry
I have the same exact thing. Did you ever find out what it is? Have you found any relief? I have been to several doctors and been on many different antibiotics and one did seem to help cephalexin or something. Bc that doctor says it’s impetigo but everything I read says that goes away in 7-10 days and mines been a couple years and it doesn’t explain the black fuzzies sometimes I feel like a bite and look and it’s the little black thing in the spot. I’ tried not messing with the sores and then one i had left alone for a long time I scrubbed to hard in the shower and it was bleeding a lot and those black things larger than usual were all over my arm where it had open and caused a huge patch of scaly blister looking skin on my arm.I have photos and hair has tons of little black and white fibers and fuzz balls and the balls seem to grow tentacle like things that grow down and have found them in my hair,in sores ,bed all over. My bf of 8 years thinks I’ve gone nuts and don’t think he can handle all my issues much longer. No one believing me is almost more torture than the symptoms. I’m just looking for some relief and came across this article I know this is a older post but just want to figure out what I can bc this is ruining my life.
I need help ASAP as I’m suffering greatly and no dictor will believe me. Tammy at (805) 256-9541
Tammy, please contact Dr. Flavin using the form on this page:
https://collmed.org/contact/
Wow. I was so glad to see someone in the medical field telling the truth and offering support that I found myself getting emotional. I even allowed myself to feel hope that this may be the begining of the end of a nightmare. That all ended abruptly when I saw the consultation fee is $750.00. Most people suffering from this have spent thousands of dollars on any and everything they thought may help, most cant work because of lack of focus, unsightly sores, insatiable itching, and fear of spreading it, these people are desperate for help and although Im sure would pay that if they could, most don’t have it. Why not make it simple an affordable for these people?
This is Dr. Flavin’s assistant.
Please me explain something to you: CollMed is a non-profit organization. The proceeds for a consultation go toward it, not lining our pockets. We are small and tightly budgeted, constantly searching for ways to keep our ship afloat.
Secondly, we state on that page that exceptions can be made due to hardship. Dr. Flavin does not deny help and has helped countless people on limited budgets over the years, including myself.
Thirdly, her consultation is a multi-layered process that includes follow-up, medical record exchange and review, research…time. Not 1 hour, but HOURS collectively.
If budget is a concern, consider the amount people spend being sick for years when they could consult with Dr Flavin and get on a right path early on.
I know it may seem like a lot to you but hopefully when you’re done reading this, you’ll realize how little it actually is in the bigger scheme of things, especially for a struggling non-profit.
Hi, please help me. I have been to my doctor, er and a Dermatologist. All have basicly told me i am crazy. Im starting to wonder if I am. It has taken control over my life
Desperately
Hayes
How little is it when you’ve got $10 & your to the point of dying from this after 2 yrs of fighting as hard as you were able? Cashing out retirements toward it while trying to convince your family that you’re not insane & watching your other half & your best friend die from it? I’m not attacking you, just trying to give perspective. I lay with 2 very sick & cryin dogs each day & try to stay alive long enough for them to go first & not me. You don’t understand. I wish I could send you a pic of my pretty face from 2yrs ago & then the present me. If only someone would have made it to watch this entire process…. then no doctor would be able to blow it off ever again.
Does Dana believe morgellons can be cured with antibiotics? Have lyme and believe morgellons.
Which antibiotic is best. I’ve used Doxy many times. Got minor results. Going on 9 years with this hellish nightmare. Also cannot afford your consult. How to get the antibiotic from my Doctor without disclosing the real reason. Being told your nuts when you are barely hanging on is well quite frankly, evil.
What if you’re far past the point of affordable or functional? I went from a normal, hard working & respected 30 yr old that had everything together, to a homeless hermit lady with 2 sick dogs in 2yrs time. My fiance passed away horribly & now my best friend as well. I live hell on earth & I’ve been treated by every doctor like I’m an annoyance they don’t have time for. I don’t have hope that this will be resolved prior to it killing me.
Wow I have a bords nest in a vent am I’ve been doctors with these symptoms twice and they say am delusional am on the verge of extreme pls help
Dr. Dana,
I’m sorry if this sounds rude, I don’t mean it that way, but some of us have run out of the time, the hope, certainly the energy, & at times even the ability needed to fill out a form. This is attacking my organs.
My name is Lisa Ferguson something bit me about a year ago an I’ve been suffering with this as well these things are in my body home vehicle where ever I basically sit or stay long enough for I guess the larve to develop off of me my kids n dogs itch an scratch like me I see these black specks everywhere now in my home the solutions I’ve come across is peppermint oil spearmint oil tea tree oil an mix I make a spray for my home an body i just found out today after hours of searching now debridding soap i thought I’ve been the only one for a year an now seem to be running across other local ppl…an yes been to dr an er only to be called crazy which is running me crazy nobody believes I’ve taking pics an even started taking clear tape an taping my body and saving all the larve an dots that come off my skin an of course 750 is a splurge on tax season so plz help my #2512228657
What tests should I ask for? I’ve had this for over a year now. I need help.
Dr. Flavin responded: Lymes, bartonella, babesia and toxoplasmosis.
Can I go an talk to a doctor and with this list and get help? Please call me I’m in Alaska. 907-202-2936
Hello Dr. Flavin. My name is Jamie and i had been plauged with these little things I call death bugs. I am an electronic engineer so I have tried so many different approaches to handling the situation…. perethin cream, coconut oil, coffee enemas, cedar oul in humidifier, tree tree oil on everything, washing bedding and clothes i wear daily….etc…. I also kept a journal as well as pictures taken with a mocroscope. I even have a video that no one could say is anything but what it is. I have written to so many micro biology departments at schools like UC Davis.,San Diego…..It had gotten so bad I went to the hospital emergency room and begged them to perscribe me ivermectin. Then one day I started having severe pain in my abdominal area. I had asked a friend to drive me to the hospital but by the time they arrived he called an ambulance instead. My appendix had ruptured. I had to go into surgery the next day after my stomach was empty. The minute I woke up from surgery i knew something was different….. i no longer had what ever it is that i had been experiencing for 8 or 9 years. The nightmare was over. Suddenly i felt clean so much so that inlight of my horrible past experiences of trying to tell people…. doctors that I have bugs on my body which never went well…. i decided to ask the physician who came to speak with me about what if anything they had found and if that is what had been going wrong all of these years? I immediately regreted saying anything by his reaction. I didnt care how crazy everybody thought i was because i had been cured…… so i thought. I wanted to share my research and try and help people who may have experienced the silent suffering and concern that I might be spreading this thing to others….. to me this is worse than corona etc…. sadly after 6 months of being free and clear… It started again. Im so bummed out but i think If i act fast maybe i can stop it. I would be an excellent person for research in this matter as i save pictures as well as samples and journal notes about my experience and discoveries.
Hi, is it ok if I contact you also, Dr. Flavin? I have been having this issue for almost 2 years now and it is ruining my life! I don’t know how much more I can take.
Yes, Katie. Please contact us via our Contact page on this site.
Would like to talk with you. I don’t know where your at in this horrific journey but I might be able to help you with a soap you can get online that literally pulls these things out of your skin while you are soaking in a tub. After my ist bath I toweled dry ( that’s a no no. Air dry) then I noticed a few black things literally falling out of my skin. I screamed and my husband said omg there all over you. I got back in shower till it quit. My body had soaked up the fibers from my fluffy dark purple towel but due to the soap I had used immediately spit it all back out. This stuff is not of the natural world I swear I don’t care what others think this stuff is nuts.
I am also suffering! What soap were you using?
What was the soap? Why won’t you tell everyone ?? ????
Sulfur soap helps w epson salt in tub. Also I use coconut oil and oils in my hair. All natural sprays for bugs in house. Steaming and vacuuming
Dr. Flavin said the soap she used was olive oil soap.
What kind of soap is it please help me I am at my wit’s end an I’m so afraid . I don’t think it’s of this world eighter to much has happened to me any help you could give me please
Good to know Kim thanks!
Lol Hey everybody i have something that works its amazing!
Good luck!
Btw this stuff is awful!
????????
Shawn what is it
What is the soap called/where to buy it?
Kim
I too have been plagued with this disease for over 15 years! If you have an alternative to relieve such as a soap you mentioned could you please provide the name and possibly a contact link? Thank you so much in advance!
just so everyone knows, we all had the same symptoms in different parts of the United States even the world! I’m in the Florida area
What’s the soap
Dr. Flavin said the soap she used was olive oil soap.
Please tell me the soap you used miss. Jackelin619@gmail.com
Dr. Flavin said the soap she used was olive oil soap.
No one is going to believe you. But it’s ok. I’ve learned through this that even those that you’re closest with will turn their head away. It’s not their fault, people don’t respond well to things thro can’t wrap their head around. Anyone that I was close with, not just emotionally but physically, has died now. Aside from my dogs, but they are as bad as me.
When I still had some hope & ability left I tried everything under the sun. Paraffin wax feels amazing…. but it’s temporary relief. For food look up the Candida Diet and when it gets worse & you feel foggy have someone that isn’t with you. I began having siezures & ear bleeds. Watched my body slowly change & knees turn dark purple with bruising. At night is the worst. I have pics and vids of it all do someone realizes.There will be frantic desparate moments…. when it starts just try to calm yourself….it WILL pass. Antibiotics make it worse. Took albendazole once a yr ago. Was wonderful, but it all came back. I believe it originates from a fungi of some sort. Disinfectant spray on items. For yourself, lotions with aloe, oatmeal, argan oil. Soap with charcoal or shea or coconut.
Cinnamon in all that you can & oregano. Oh…. there’s so much I can tell you. I kiss6 wish I had a cure rather than just relief. Sorry for the long message….
You are right because I found mold in my home and this happened shortly after!? Fungi, certain anthropoids and blood sucking insects that are vectors for this bacteria as well. Completely horrible ????
Hello Kyle, I was wondering if you would like to chat? Every single thing you wrote on this blog is the same situation I’m in, the same things I’m seeing, and of course I am getting the same response. It has been some time since you wrote and to be experiencing the same response doesn’t make sense if there are this many people experiencing this strange anomaly . I would like to know if you have found anything new? I don’t care where you are located as I am in Seattle Washington and if ANYONE can direct me to anything that has been figured out or any current information I would be grateful and I’m available to share my experiences as they are ongoing. My email is meegeepage52@gmail.com
What is the name of the soap, plz. That wasn’t very nice telling of how well this soap works and then not reveling the never of the soap. Geesh
Lady have a heart.
She does mention the soap in one of the replies if you review the previous comments. If not, I will ask her again.
I have used the doctor brommers pepermint soap and that works for a minute. The problem is you cant scrub inside your olsfactory gland with soap.
Can I know the soap please
Dr. Flavin said the soap she used was olive oil soap. Some here have suggested Dr. Bronner’s peppermint soap.
What is this soap??!! Please need help for me and 6 yr old daughter!!
It’s olive oil soap from what I recall. She did respond to this.
Please make an appt with Dr Ginger Davely. Lymedc@gmail.com
I need to get straight to the point because I don’t know what else to do nothing seems to work for me and I think my marriage is coming to an end. My husband doesn’t believe me at all he won’t even hear me out when I feel I see these fiber like things EVERYWHERE. I have seen these shiny fiber things come out of my skin. First I thought my excema was just getting worse, very worse all over. Then the tingly sensation started then a burn feeling an then a feeling of something trying to come out of my skin. Out of my pores! No bugs I’ve seen yet no moving thing besides when I had spit into my sink cause I seen something white pop out of my lip that I freaked an when I spit in the sink the spit bubbled into teeny tiny black dots then boom little worm like things but not sure what or how. I went to the hospital after a few days cause I was terrified an still am that something crazy is gonna come out if my skin if I shower or get wet gosh I’m terrified. The doctor basically told me and my mom that there was no way I’d have parasites or mites cause it’s to cold outside for them even when I showed him my toe it had teeny tiny holes in it from when I took a shower an white stuff came seeping out. He gave me a script of steriods an said that if I happen to have something that it’ll take care of it or we would know then. I’m on the 1 pill a day for 3 days then see what happens after. He would not even let me speak he wouldn’t gear me out the only decent person was the receptionist!!(my mother believes me) but hasn’t physically seen anything yet besides my lips an things popped out of my skin an I wipe it an it just comes back. Ugh i don’t know what to do. I don’t want my 2 daughters to see me act like I’m crazy or my husband to leave because I know there is something there something is inside me. I feel it. I have these fiber things all over my home and I mean all over I sanitize I clean I see mop dust. We have animals but I’ve never seen these before. I took the pictures I tried to use as proof that I have something an changed it to negatives on app and you can clearly see stuff!! Looks like hair and fabric or something. Please help I don’t know what to do! I’m a cook an cashier at a gas station and who knows if it’s there now too if someone else has it or how I got it. I don’t know and I need help!!
Janessa,
I know how frantic you feel……I remember. That will calm in time because it only causes other people to think your nuts. I know you’re not….& I’m just being honest here…the more your try to convince someone the further away they’ll get. It’s going to be wherever you have been. In time you’ll see it more. There will be times your brain make a thought, other times where your scared, even times where you give up. But don’t let give up reason ever be because of someone else’s fear of what they don’t understand causing them treat you like you’re droppin your basket. They seem like jerks, but they just can’t wrap their head around it. It’s less scary & way less effort for them to chalk it up to ” she’s lost her s#$@!” So they can run away from the unknown and not feel guilty. I wish I had those give up moments back now for more time. I’m currently sitting in a car crying while I try to help my older dog to breath…. the other dog convulses. We are what’s left out of this. My fiance died. I watched the process & was with him while he did what my dogs doing now. As well as my best friend Crystal 2 months ago. She didn’t believe me 2 yrs ago
It takes longer than you can tolerate…. but it does get to a point where those people that said you were crazy can’t deny what they see with their eyeballs. Wish I could post before and afters of them and myself.
Best advice I can give to all reading is DON’T doubt yourself no matter how badly people start treating you don’t blow all of your energy & money on docs.. Research….read….. share as far & wide as you can and be LOUD about it.
i am in the same situation. Ginger Savely is prohibitive $ most of us have lost it all except our chronically ill pets.
I also am suffering miserably and my 6 yr old child please someone believe me it’s very bad 6 months now I’ve lost everything from my 2 smaller boys and home and car every thing no family believes me doctor won’t even check just called CPS on me CPS wint even investigate I hear nothing back from them I am very sick and my child please somebody believe me help me 304 7192087 oak hill wv jackie
Poor thing try co enzymeCQ Dr.whitakers supplements seem to help with the symptoms and iodine supplements and they hate honey I have had it for 3 years finally almost have all the sores gone. Coconut oil take capsules and royal jelly.
Jackie, I’m so sorry for what you are going through. Please call me. I have had this disease for 3 yrs. Please call me I can help. (815) 618-9071 thanks, Mike.
Same craziness for me and my toddler and like everyone else here no one believes me. It’s been at least a year if not more my daughter has scratches I know why she is itching and don’t know how to help talk about feeling awful at the same time I have no idea how to go about every day with this on my mind my daughter is only 2. I go through lint rollers like crazy every day all day I lint roll everything from our bed,our bodies and all the clothes after being washed and dried. Don’t know how to deal with much more. I noticed sweat brings them out. My bedroom is the hottest in the house so it a constant battle. Yes my daughter sleeps with me, pretty much everything with me so us both having what ever this is taking a toll on me. I also noticed if my daughter sits on the floor that’s has carpet she itches so imagine tryin to keep a toddler off the floor. I even see the fibers on the tv I try to keep it dusted but again nothing seems to work I do have a dog and a cat that come and sleep in room. I was wondering if it started from the ceiling where there is a leak from roof or the window I’m sure there is or was a nest of birds or squirrels. I’m all out of ideas someone please help. Thanks
Tammy! I am as well…. for nearly 2 yrs. Have lost all friends & family. Quit my job. It’s ruined my life. I’ve been to countless doctors. It’s literally killing me. Starting to have days where I cannot breathe or see well. I know some things that relieve temporarily but only for a brief time.
Hi. I have been suffering from this for 5 or 6 years now I think. I finally got a microscope that will give a fairly clear, discernible image at 500X magnification and somewhat discernible image at 800X. What I saw was lots of mites. Some kind of demodex species but not sure species name. Also saw what looked like coiled up worms. The mite samples were clearly moving and criusing around the slide . You could see their stubby eight legs waving to and fro.
The worm samples were not moving but looked like some type of microscopic worm.
These werent cellulose or nylon fibres in my opinion. Especially not the moving ones.
I have video and stills. Just need to force my Doctor to look at them.
Showed a few people and they were dumbfounded.
Can you please send your findings to me? I have a 100x magnification microscope but I can’t see anything. I know that they are there though. All of my clothing ends up with fuzz balls or fabric pilling on it. The crotch, butt area and the seat of my boxer shorts are where there is most pilling. I can feel them crawl on me and drop down my legs to my ankles and feet. There are fuzz balls all over my socks as well. I NEVER had fuzz balls on any of my clothing before this. Now it has started on my tshirts to the point where the fuzz balls are developing on brand new white t shirts while I’m wearing them for the 1st time. Sometimes there is a visibly darker spec in the fuzz balls, sometimes the whole fuzz ball will be a darker color than the fabric it has formed on. I have tried looking at these with my 100x pocket microscope but no luck! I don’t understand where these things are coming from or where they hatch or spawn from. My email is joeblowschmoes@gmail.com. please help? Thank you
Could u share ur photos and or videos from ur research with me? I am Abt to completely lose my mind…I’ve been dealing with this for Abt a yr now and I have a 1 yr old grandson and I find them on him and it terrifies me. My health is going way down hill and I have episodes when I feel like I’m going to pass out and can’t breath usually in the shower or as I’m trying to get out! I’ve done Soo much studying and like everyone else here noone believes me and thinks I’m crazy! I’m too scared to go to any Dr for this as I fear I will be admitted to a mental hospital. I would really love to compare notes. My email tricia1322@gmail.com if u contact me I will give u a number to call or text if that’s better…plz help!
I have same problem….mainly on my scalp…1 yr. Ago I lost 50 lbs….I am female and 60. Yrs old.sometimes they itch on my scalp that I take tweezers and remove the black rooted hair follicles and sometimes they bleed..I am blonde..I use debriding soap to get bugs pieces of string worms…its too much to deal with but I have found ways to live with this..supplements..etc..
I am online searching for answers like I do every night. It blows my mind how many people out here are suffering from this same thing and we have to resort to our own remedies and own research because no doctor gives a damn about us. Why did they even become doctors. It’s not to help people. That’s for sure. I also thought of a possible government attack, through our food, maybe the 5g towers, in the air….I don’t know but I’m with you guys. This is a living nightmare. Ive been to the ER 2 times. I’ve seen countless doctors. Not one will help me. I’m up to 5000 dollars in doctor bills. I’m giving up on doctors. Ive tried ivermectin, praziquental and albendazole that I had to order myself online. None work. I’m wondering if we need a bigger dose or do we need to stay on it for a longer period of time. I don’t think it’s going to matter. Whether this is Morgellons or some type of fungus or parasite…… no one will help us regardless. I too have lost over half my hair. I get attacked worst at night. The rashes and itching are my worst symptom. The only thing that helps me is lidocaine cream so I don’t have to feel it any more and can actually sleep a straight 3 hours before it wears off. I only have a few people who believe me. The rest think Ive lost my mind. My husband is sick of hearing me complain. I feel like I’ll never get help. Who do we go to. Who will take the time to hear us. No one will look at my videos of things moving or videos of me actually pulling these out of my skin. I’m at my wits end. But it is very strange to me how many people are suffering from this same thing. There has to be something going on.
I was vaccinated in 2009 and within days came down with M symptoms. Still suffering but made progress after seeking a Lyme lit doc in 2016. Taking handfuls of antibiotics daily but it still won’t go away.
Read the article from Johns Hopkins on Herbs against Lymes.
http://outbreaknewstoday.com/johns-hopkins-researchers-plant-compounds-may-better-current-antibiotics-treating-persistent-lyme-bacteria-16025/
Hi there. So sorry u r suffering. U need to treat internally. This also involves mold/ fungus. The mites lives in filthy conditions. There a couple good sites on FB. Private groups. Great people. So much info. Real science going on.
Snowshoecap .. you’re right they do look like a demodex mite I have samples you wouldn’t believe that come off of me doctors think I’m crazy, started with the apartment that I live in” never had this before some kind of mite and it just went from there apparently my neighbor upstairs has it and wasn’t honest” he lives above me now I’m dealing with this .. never noticed the fibers until this week all of a sudden these balls all over 2 years and I never noticed them until recently, this started when the pest control guy sprayed under a countertop in my apartment. And every time you get near the counter these things will shoot into your body that burn you can literally pick them out of your skin unfortunately I got one in my eye swelled up and this thing was swirling around in my face for 2 months it went into my ear I put peroxide in my ear and it must have killed it and it ended up coming out of my tooth in my gum weird stuff been nothing but a living nightmare. It’s definitely a living parasite I own a parrot and he knows where this thing is at it draws him to where it’s at and attacks him I also had to take him to the vet but he knows that this parasite is in the closet so I try to avoid that closet at all times.. I’m going to take my samples to the doctors with me when I do go they can’t deny that this is something when they see it.. a flat cellophane demodex looking like sometimes they’re thicker and have a slime texture to them. Some white and some r reddish brown … I use baking soda coconut oil and white vinegar in my bath and it seems to help a lot.. .. at first I thought it was fiberglass from the asbestos in my ceiling because it’s in all my clothing.. but obviously it’s more than likely coming from my neighbor upstairs from his closet to my closet from his kitchen to my kitchen.. .. he takes all kinds of vitamins CQ10 iodine over two and $300 worth of vitamins a month and I wondered why when I met him cuz I had to get rides obviously he had this stuff and was not honest… I wouldn’t wish this on my worst enemy i know what everybody’s going through.. if you look around your home you’ll find these little brown different shapes all over.. that’s what they come from that’s how they start. The only way I could see them was to take a picture of them with my phone ,it works like a microscope.. there is so much more that I could tell you but this is the main things.. I’ve experienced… if I find any new ways to help.. or learn any more about this parasite …. I will be sharing.. God bless you all.. ..
Dr. Flavin wanted to share this info:
“Please contact Dr. Ginger Savely for further support as that is more her specialty on Morgellons and lymes.”
Please, my wife and I are suffering from the same thing and the Dr.s won’t aknowledge the facts. We’ve tried everything from kleen green to bleach. What is the name of the soap you used please. We have a 2 yr. Old and a new one on the way and scared they will contract this. My 2 yr. Old wak s all night scratching all over ever night so can’t be too far from him getting them if not already. Please help. My email address is
twoowettdoggs@gmail.com. thank you
I have been dealing with fleas, very small black parasites that bite and go into my skin. And bed bugs from hotels. My husband has red bites on is thigh and butt. He doesn’t feel a thing. I can’t believe how I am the only one with this. I haven’t been able to sleep because of them. Help!please
I’m wondering what antibiotics were used to help with either the Morgellons or Lyme because every single time I use an antibiotic, I get vaginal Candida ( if it even goes away) and started taking Diflucan ( an antifungal), which still doesn’t seem to do the trick. I’ve been using mustard, which has seemed to get thousands out of the skin, but between the worm like organisms and the biofilm, it comes right back. ( I mean it seems like everything self replicates right back in it’s place. It’s extremely overwhelming. Where does one go to seek trustworthy help when in addiction recovery and recently off the streets from being homeless, with little cash but fortunately Medicaid?
Soak your feet in mustard and a little cigar tobacco. Kills them daily. Use a lactobacillis suppository for the candida and take an oregano capsule daily. That kills fungi! No white flour or sugar.
I’m going through same situation and I’m on methadone. This stuff comes out of my skin all over my body. The sores won’t heal and I’m swollen from whatever this stuff is in my body n skin.
Stephanie my heart goes out to you.Please note I am not a Doctor I’m just a person who has learned a thing or two and will share the info. If it hurts don’t do the Garlic, natural should sooth not hurt So I have a friend who suffered yeast infections chronically. Her life was awful. So after years of Western Medicine she changed to natural medicine, part of the treatment was Grape Seed Extract taken daily. She also was to use Garlic as a Tampon Do not peel the clove as it will be much to strong.I do know one woman who could not do the garlic tampon because it burned so caution is the word for sure She said she was told to .Run a thread through it and insert over night. I know it sounds rude but this is what she did and she became well and left this torment behind. If it burns its to strong and the area is to tender. You need to eat a ton of yogurt, it’s best to buy it at the health food store. You can even get tablet form, there in the fridge and must be taken with food for best results.
I have been plagued with this for two years, I can’t tell you how I know but this is a Reptillians bug they spit or throw on us,,they don’t have hair follicles so they don’t affect them…They ,,,Reps” are the Illuminati and they are trying to make humans extinct….Trust me,,,Jesus knows is all I can tell You…..God Bless….
What is the name if the soap?
I think the soap she is talking about might be called “Debride soap”. You can find it at”www.ParasiteStore.com”. Go to “How I cured morgellons .com” for mite info. also. Two great sites!
I have picture of this parasite! It’s a stick like bug with a fine hair protruding from it it’s very long but breaks easily it’s intestinal was in my dog as well as my son!!! I’ve been trying to find out what it is to no avail but this. It’s not psychosis. Not imagined it freaking real!!
Dr. Flavin said the soap she used was olive oil soap.
I am having the same issues. I have spent every last penny i have on things to make this go away. I have a tumor on my right adrenal gland also. I have no energy to try and fight this anymore i consider suicide everyday more and more. Im loosing my hair my body aches. My face is broke out and before this i never had breakouts. I have sharp pains in my heart. My vision is blurry my left ear feels like i have hearing loss. If theirs help or a cure for this please someone help me. 9032889642
Please reach out to Dr. Flavin asap. You can heal yourself.
https://collmed.org/consultations/
I can’t help but I am from the same geographical area and have a 903 area code. I was recently told by Christus formerly Good Shepherd emergency room I was crazy and they refused to see me and this was only my 3rd visit. I am an educated women with my bachelor’s in Psychology. I say this never to boast but to help you understand I know what crazy looks like and how can I be completely sane in every other aspect of my life but this one. From the worms to the lint that is so hard to kill without it coming right back and multiplying, I have the same symptoms. I could not believe people mentioned the lint that turns into small black speck instead of looking like squashed lint when you are dealing with real lint. Believe me, there is a difference. I always heard how intelligent I was all my life and now my family either completely ignores me or says things like well she’s flipped her lid. Please email me if you are still in the East Texas area. We can exchange phone and from there and maybe putour heads and resources to better use. My email is punkylubb@gmail.com.
I have found all of this very useful. This has been the word trial of my life! The crawling, the biting, things coming out of my skin, the continuous itching. I am now being referred to an infectious disease Dr because my gp refuses to acknowledge the symptoms beyond a ‘skin rash’. I am on amoxicillin, but not sure the dose is strong enough and I cannot find on the internet what the proper dosage to be. Anyone out there know?
I have been goin threw this for over a year now and it just keeps getting worse no doctor will believe me an now I have real worms coming from my face an body an the worse part is I have a 6 year d grandson an I know he had this to what can I do to get helps m goin insane an being eaten alive
Sherry, We have been dealing with this for about 9 months and have learned about a type of Doctor out there that are very skilled in this area. They are not run of the mill western medicine pharma doctors. These Doctors fall under the catagory of Functional medicine. Functional medicine is one that incorporates western medicine and Naturopathic together. You might try looking up Lime Summit or Mold Summit. Morgellons involves bugs called Spirochetes. We are finding some good answers there. We are also finding that Ozone therapy is very powerful in fighting it. When you get morgellons the bugs call a party and invite other parasites like worms. We are dealing with this as well. Ozone therapy is very powerful in helping to fight this. It is called Ozone insuflation which can be administered to nazal, ear, sinous, colon, or vaginal to kill the worms. One who teaches how to do this is a man named Mark who has many youtube videos teaching how to do it. on his website at https://trulyheal.com/ozone/
I have been dealing with this itch like symptom painful crawling feeling for 5 years.
I do feel like I am going crazy from it. Doesn’t wash off. It has made me afraid to go anywhere. Feels like it covers my face sometimes and cant breath. Use oxygen. But even that won’t help. I do feel the strings. And every thing people are saying I can relate. I need a Dr that can help.
I have had this for ten years and is it not cancer?
Yes this is biotechnology, peoples
1.Seaweed pills/scrub face wash everything seaweed.
2. Cinnamon pills
3, body wash with pure 100% coa coa
I have been living through the his hell for 4 years now. We have had red bird mites that were identified and after spending a fortune on hundreds of treatments and 4 different pest control companies , In desperation , I have moved out of the house. I took nothing with me, not even my mobile phone or passport , nothing. I sat in a Sauna for 2 hours to get everything out of my pores so that not a single mite could follow me.
But now , only a couple of weeks later, I find that I have these bites and crawling sensations starting again.
My friend suggested that it could be morgellons. However, I haven’t noticed any fibres, does morgellons always include the black fibres that people mention?
What is the antibiotics that seem to work? Any help would be appreciated.
After so many years and racking up so much debt trying to get rid of this affliction I am at my wits end. Severe depression and suicidal thoughts have now crept in . I have always been a very strong woman but this is a battle i seem to be losing so any advice would be appreciated.
I HAVE SUFFERED WITH THIS CONDITION NOW FOR ALMOST A YEAR, WITH NO SUPPORT BECAUSE MY FAMILY THINKS IT’S IN MY HEAD. THERE ARE TIMES I JUST WANT TO DIE CAUSE I SEE NO END TO IT.
AT FIRST I GOUND A.TICK ON ME, PERHAPS FLEAS, WORM SEE TO BE.VISIBLE INDER MY SKIN. I HAVE TALEN.ANTIBIOTICS, PROBIOTICS, USED STERILE SOAP. SOME HAVE GONE,
BUT I AM STILL IN A NIGHTMARE. THE RAISED WHITE AND.PINK.SCANS THAT I PULL OFF ME, THEY ALL HAVE A.SPEAR SHAPED TAIL THAT BURIES ITSELF DEEP INTO MY SKIN. WHEN I WIPE THE BLOOD OFF IT HAS TINY BLACK DOTS ALL IN IT.
I HAVE SORES ON MY HANDS ,
BACK OF NECK AND FACE THAT WON’T HEAL. WHEN I GET IT OFF ANOTHER SEEMS TO COME UP FROM UNDER NEATH MY SKIN. SOME APPEAR TO HAVE TEETH. I HAVE TAKEN PICTURES.
WHY AM I THE ONLY ONE THAT HAS THEM. I GET SCARED FOR THOSE AROUND ME. AND THE ODER SMELLS LIKE BURNED , DEAD ANIMALS. ITS HORRIBLE.
BEEN TO EMERGECY 5 TIMES.
TWICE THEY WANTED TO LOCK ME UP & ONLY ONCE TREATED ME.FOR.PARACITES,
GIVING 7 PRESCRIPTIONS THAT I COULD NOT AFFORD!
ALMOST $1000!!
PLEASE HELP ME BEFORE I COMPMEATLY GIVE UP ??
Terri
You are not crazy. None of you are. You all have to be strong. I’ve been suffering for over 20 years. I got it in the North Bay near San Francisco where they think it originated. I had all these symptoms when I was a kid. One of the many creatures That comes with this constructed disease is a worm like parasite, and yes it seems to have a flower like head with teeth. Almost venous flytrap like with a white/translucent long snake shaped body. When you try to pull them out of your skin they pull back with a force. I have pictures and videos that would make any reasonable person think that it was from a Sci fi movie. I had an internist bring his entire class of med students in to see one of my videos where red and white worm like threads shot out of my fingers like hot tub jets when I put them in vinegar.
But besides that, I just wanted to tell everyone to hold tight and fight. People will be apologizing to us when the truth comes out. We just have to make it to that point. And I know we can. The iodine and seaweed protocol might be a winner. Text me at Brd4986@hotmail.com if anyone has any insight or just needs to talk. Good luck
We have found that Ozone therapy and ocasional UV exposure by suntanning seems to help. Parasites dont like ozone or ultraviolet. My wife’s lesions have all but dissapeared within about 2 weeks of using a tanning bed 3 times. My daughter who also has it is responding to Ozone Insufflation which seems to have the worms on the run.
The lint and now the burned smell. Holy hell I feel like even though I’m still afflicted, I finally have validation. How can so many people with wxact symptoms be wrong.
I have had this for approx five years that I know of. I wanted to see Dr. Savely but since I’m still struggling to quit smoking I am not deemed worthy of treatment by the good Dr. I was tested for Lyme with a negative result, yet I am a textbook case. Treated like crap by every doctor, shunned by family and broke after having to stop working and spending a small fortune on products to help. I also have lupus so fatigue was a problem even before this horror began. I recently purchased mimosa pudica online for internal bowel cleansing, seems effective. I opened a capsule and put on my skin since I’m covered with lesions and have wormy skin parasites. Lots and lots of stuff came out immediately. When I applied water, it got very gooey and as I rubbed it over skin it pulled out lots of stuff. I need a doctor’s treatment with antibiotics but infectious disease refers me to dermatologist who refers me to infectious disease and so forth. Whatever I use that helps to eliminate builds tolerance quickly. I am in new York but I would travel to a doctor just for a diagnosis so that I can get treatment but I don’t know where to go. Stony Brook University and teaching hospital on Long island is conducting research on this but I cannot be seen without a diagnosis. If anyone can give me a name and location of a real doctor who can help, I will share any helpful info that I can get on here.
We are finding that Ozone therapy and uv from tanning periodically have cleared up the lesions and are elinating much of the coinfections worms etc.
I first would like to say thank you Dr. For reaching out to all of us i have been needing to find some kind of information that might could help for over 3 years now, constantly researching every aspect of this nightmare my husband and i are living, we just want our lives back, its amazing we are still together after spending multiple thousands of dollars trying to get some type of relief from all of this which it has effected both of us the same but so differently as well. Started out as itching and rash feeling scratching using every kind of over the counter cream, sprays, ointments, i started having sever respitory problems with it, he was bombing our home with every fogger and pesticide available in which he over did it we were living in motels because our home was so infested and we didnt and still dont know with what ibelieve mites we had a professional come out to evaluate our home was affraid it was bed bugs but they found no signs of that the smell is so distinctive and still is. We were forced to move out of our home of 8 yrs leaving our bed couch his chair we were cleaning,steaming,vacuuming our walls, ceilings, floors, tub; toilets, bedding, beds every single night wed bathe and so reasy to lay down just to be right back up with in less then a hour due to feeling like we were being ate alive, we were not sleepingat night making our days harder especially driving for a living being out ob the road all the time, finding motels became a huge problem for us somewhere to feel comfortable in not to mention while wotking driving down the road start feeling this beind the wheele i got to where i carried a soray vottle of 91% rubbing alcohol and soraying myself for relief, i spray all my xlithes before dressing i wash my cliothes i. Gain dawn dish soap for antibactrial borax and lysole laudry detergent in hot water ever wash and hot heat to dry trying to kill anything that might be luving in our clothes, our friends and family think were crazy they dont tell us that but i hear them its like it goes through stages we were even having lice problems a couple times when this all started talking about horrible feeling so we spent way to much money on that the chemical from everything used i couldnt take no more and my husband became obsessed with it so bad as he started spraying his body trying to kill thses bugs he know has leasions up and down his arms, i do as well but i dont pick them nor do i scratch them anymore. He use to get so frightened while taking a shower he would jump up on the sides of the tub. But he doesnt feel them crawling and biting him any more he just deals with his arms trying to get them out of him, i still feel the crawling and biting fixing to go on our 4th year feeling like this im now having trouble with my knee and the swelling and pain from it goes to my entire leg by the end of the day. Ive started some herbal things but just not enough if anyone can help we would love to have our lives back and maybe live again my husband will not go out in public due to his arms and im starting to have problms of aging and small blank spots on my face that look like blackheads but their not blach heads you can pop or use tools to get out even w scrubbs but you cant pop these no puss will come out nothing these will not come out and i do not pick my face to make them and ive done and spent lots of money trying differnt things for my face and the little black specs still remain under my skin of my face. I could go on and on so any advise please let me know.
Pls help me out my girl needs some drug or she’s not going to make it
What are your daughter’s symptoms?
I need help. Living like this, it’s no longer an option. Multiple test, multiple doctors…I’m dismissed or wrote off everytime.
Did the soap cure u?Plz help 2512228657 is it the debriding soap
I’ve exhausted all medical resources I have this condition I be had it for 8 months now originally after 2 months found I had a crusty mite infection unlike regular scabies it’s the super scabie with thousands that attack your joints and the pain was something I can’t even explain finally got that diagnosed after I saw a lil white bug crawl out of dry skin on my finger under the magnifying lamp once that was treated I felt better for a week or so then I thought it was just parinoa from that that I still kept feeling this things that weren’t the same as the mite but my hair would move like 3-4 strands would just start moving no wind no where else on my head etc. I finally bought a microscope and yesterday after pulling out I don’t know how many strands of hair over the last several months I noticed something that looked like dust particle on this particular hair I put it under the microscope and I about had a heart attack when u could see this translucent strings almost like a microscopic spider web with a couple lil black dots in it and it was moving it’s n a Petri dish with lid now I got online looked up “fuzz” parasite and the pics that came up I almost passed out finally I have an answer to my prayers yet no where to take it my pcp let me go cuz I got upset when she kept denying my symptoms I have so many drug tests done all clean by the way but I’m still labeled as crazy n my hometown the urgent cares the hospital and 3 cities north of me hospitals urgent cares dermatologists I’m just labeled as nuts I sit n the waiting room and watch 3 times as the room fills and empties and I’m still waiting to b called:( I’m n Oregon anyone with some ideas on what I should do next please help me!
You have morgellons try to soak in mms bath adding 49 to 59 drops of activated solution to hot bat Hdo it twice a day make sure you clean everything afterwords
Id the soap cure u?Plz help 2512228657 is it the debriding soap
Hi Lisa did you say you were in uk, or is anyone else from uk on this chat?
What I want to know is why the treatments that Dr. Savely and Dr. Flavin are not making their known therapies public.? Everyone with this is strained of finances, and yet no one here seems to be a patient of either one of them speaking of what worked.
We get it! We’re strained as well. We’re only a small group. We’re not affiliated with any big insurance companies or Big Pharma. We have to charge a fair amount since we aren’t reliant on bigger entities. I hope you understand.
I live in South Carolina and have been dealing with this for about a year and my experience has been almost word for word what I’ve read in this thread. Just like many of you, I have dismissed by multiple doctors and told it is my eczema flaring up. It has been a living nightmare and I have tried SO many things with no success. However, I recently decided to try using a tanning bed after reading somewhere that someone had been having some success with that. I bought a tanning package and have been going to the tanning bed almost every day for about 2 weeks and while it has not completely eliminated my symptoms it has greatly reduced them. I haven’t felt this good in over a year. Even though I still experience symptoms, it is nothing compared to the anguish and torment I was experiencing before I started using the tanning bed. This makes me believe even more that I’m infested/infected with something and that the UV radiation is killing it.
Which antibiotic did you find success with personally?